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[…] We’ve been able to set up a scholarship fund to cover the registration fees for FSHD patients and family members who need financial assistance to attend this year’s FSHD Connect […]
The newest issue of FSHD Advocate has left the printers and will be landing soon in your mailbox. To get an advance look, or if you’re a digital-only reader, here […]
The latest issue of our flagship magazine, FSHD Advocate, has left the printers and will be landing soon in your mailbox. To get an advance look, or if you’re a […]
As with any aspect of the human condition, living with FSHD can inspire all forms of artistic expression. Cypriot Argyri Ioizou recently won his nation’s first-ever slam poetry competition. Congratulations! […]
[…] in an advanced stage of FSH and recently fully wheelchair-bound. As an older patient with FSHD muscular dystrophy I have decades of experience with adapting to an ever-changing body and […]
