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[…] Backyard 3744 Moore Street, Mar Vista, CA 90066. 1:00-5:00 PM A gathering for people with FSHD from the Los Angeles region, for networking, learning, advocacy and more! Organized by the […]
[…] that we believe will see effective therapies become available – the families that form the FSHD Society face new challenges. This year, we have an unprecedented opportunity to participate in […]
[…] give kids an explanation they can digest. I was casually talking to one of the FSHD team members at Fulcrum Therapeutics (a biopharma working on FSHD therapies) about our daughter’s […]
[…] We’ve been able to set up a scholarship fund to cover the registration fees for FSHD patients and family members who need financial assistance to attend this year’s FSHD Connect […]
The newest issue of FSHD Advocate has left the printers and will be landing soon in your mailbox. To get an advance look, or if you’re a digital-only reader, here […]
