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[…] and Lexi Pappas, were featured in Muscular Dystrophy News, sharing their struggles about living with FSHD. Diane is Lexi’s mother and the two live in Massachusetts. Lexi shares both the […]
[…] the survey now! Click here. The FSH Society is participating in an international workshop on FSHD patient registries later this week. We would like to share the patient and family perspective on […]
Good Bad Things is unlike any film you’ve ever seen by Erin Saxon, FSHD Society Good Bad Things is almost here! Last August, we shared updates on the project, and […]
[…] the Event can be viewed & purchased here:   www.donijones.com  (Go to clients > access code = FSHD, password = 2016) The Ruekert Family Doni & Marble Jones donated their time & […]
NOTE: CME accreditation for our on-demand masterclass on facioscapulohumeral muscular dystrophy ( FSHD) expired on September 30, 2023. This course is still timely and full of valuable information. You can […]
