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[…] results from its Phase 1b/2 003 trial assessing the safety and potential activity of Resolaris™ in patients with early onset facioscapulohumeral muscular dystrophy ( FSHD). Read the full press release here.
[…] a committed and selfless community of patients,” said Kinoshita. “They inspire all of us at the FSH Society to work extra hard.” Click to download: MDA 2017 Poster – FSHD Patient Survey.
We’ll help you find the resources you need, no matter where you are on your journey with FSHD. Connect Via Email Submit Your Question(s)
[…] this would be my year to compete in it. I used to always hide my FSHD, but something changed within me this year. I have opened up and I am […]
[…] disease. After thirty-two years, it was about time. “Are you willing to talk to me, FSHD? I know you are there.” “Yes.” “Can you tell me why you showed up […]
