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[…] a regular basis. That planted the seed in my head that said, “if others with FSHD could do it, so can I.” I decided to download an app and try […]
[…] its symptoms and severity. Our webinar on May 22 will introduce the basic facts about FSHD for people who’ve just been diagnosed, or who want to brush up on their […]
[…] develop drugs. They urgently want to know, what does it mean for a drug for FSHD to be “effective”? You might think this is a silly question. Isn’t the answer […]
[…] results from its Phase 1b/2 003 trial assessing the safety and potential activity of Resolaris™ in patients with early onset facioscapulohumeral muscular dystrophy ( FSHD). Read the full press release here.
[…] a committed and selfless community of patients,” said Kinoshita. “They inspire all of us at the FSH Society to work extra hard.” Click to download: MDA 2017 Poster – FSHD Patient Survey.
