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Everything you ever wanted to know about FSHD

Home / Living with FSHD / Everything you ever wanted to know about FSHD

Posted on: May 14, 2019

(but were afraid to ask)

There’s no doubt that facioscapulohumeral muscular dystrophy is a complicated condition. The challenge of pronouncing it correctly is a piece of cake compared to the difficulty of understanding its genetics, peculiar effects on muscles, and the extreme diversity of its symptoms and severity. Our webinar on May 22 will introduce the basic facts about FSHD for people who’ve just been diagnosed, or who want to brush up on their knowledge.

Samantha LoRusso, MD
Samantha LoRusso, MD

Dr. Samantha LoRusso is an assistant professor of neurology at the Ohio State University Wexner Medical Center in Columbus, OH. She worked closely with Dr. John Kissel at OSU as a fellow and then as faculty until Dr. Kissel’s retirement in 2018. She is a principal investigator or sub-investigator for research studies in FSHD, myotonic dystrophy, GNE myopathy, and Pompe disease. She is OSU’s current NeuroNEXT fellow, a fellowship designed to help in the development of clinical trial protocols.

CLICK HERE TO REGISTER

Please note: Your confirmation email will contain a unique link to access this webinar. Please save this confirmation email to access the webinar on May 22.

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Filed Under: Living with FSHD

Comments

  1. David Guthrie says

    May 27, 2019 at 11:07 am

    Due to a previous commitment, I unfortunately missed Dr. Samantha LoRusso’s webinar presentation that I was looking forward to seeing. Was this recorded? Can I access it on the FSH site?

    Thank you very much.

    Reply
    • June Kinoshita says

      June 1, 2019 at 12:06 am

      Yes, we’ve posted the recording on our YouTube channel and News Center.

      Reply

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