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[…] a good Samaritan finds the treasure and returns it. That’s what happened recently when long-time FSHD Society member Don Burke was updating the Wikipedia page on Facioscapulohumeral muscular dystrophy and […]
[…] President and CEO of the FSH Society and a 48-year-old patient with facioscapulohumeral muscular dystrophy (FSHD), the most common form of muscular dystrophy, hailed new findings, published today in Science, […]
[…] that occur naturally in our cells to repress DUX4, the “toxic gene” thought to cause FSHD. A deeper dive into why FSHD muscle may have trouble regenerating. These are some […]
The FSH Society, a world leader in combating facioscapulohumeral muscular dystrophy ( FSHD), announced this spring that it has committed $550,792 in funding to six research projects that aim to […]
[…] University of Rochester, New York, and lead author of the first evidence-based care guideline for FSHD, a project the FSH Society supported through consultations and advocacy. Summaries of the guideline […]
