In this interview, Dr. Jeffery Statland of the University of Kansas Medical Center explains how FSH Society funding seeded the creation of the seven-site Clinical Trial Research Network (CTRN), which in turn led to the largest clinical trial preparedness study that has ever been run in the United States. We have entered a convergence zone―a… Read More »
An undeniable sense of optimism
What Would You Like to #AskTheResearcher?
For the past 25 years, countless researchers have dedicated their time and energy striving to find a cure for FSHD. Thanks to the work of researchers like Dr. Jeffrey Statland, Dr. Rabi Tawil and Peter Jones, PhD (just to name a few!), we are a strong community filled with some of the brightest minds in… Read More »
Progress in 2013
After wrapping up what was a busy first month of 2014, we finally have a moment to look back on 2013 and acknowledge what a busy – and successful – year it was! Throughout 2013, we expanded our networks locally and nationally, partnering with the University of Massachusetts’ Wellstone Center for FSHD Research and Training…. Read More »
First FSH Muscular Dystrophy High-Throughput Drug Discovery Study Published
From PRWeb press release, February 6, 2014. In research funded by the FSH Society, a patient advocacy organization, a Minnesota team has identified drugs that block the toxic effects of a gene involved in a most common form of muscular dystrophy. Facioscapulohumeral muscular dystrophy (FSHD) is among the most common muscle-wasting diseases, affecting more than… Read More »
FSH Watch Winter 2014
Highlights include: Report from the 2013 International Research Consortium meeting in Cambridge, Massachusetts. Advances in basic research, clinical trials and future drug targets. Introducing our new Celebrity Honorary Board. Stars from film, TV, music and sports sign on to help raise awareness. University of Massachusetts Medical School opens new FSHD research center and clinic. Photos… Read More »