Search results for ‘fshd’

Advocating for Change on Capitol Hill

Advocating for Change on Capitol Hill

A Day of Impact in Washington, D.C. On May 8th, the FSHD Society held its first-ever Day on Capitol Hill in Washington, D.C. This milestone in our advocacy efforts brought […]

Interview with Daniel Perez

[…] Congressional committees to seek funding for research into the deadly genetic muscle disease. Living with FSHD himself, Perez knows firsthand how dire the mission is to find a cure. And […]