Our look is new. Our purpose is the same. Learn more about our brand evolution.
[…] granted Fast Track designation to losmapimod for the potential treatment of facioscapulohumeral muscular dystrophy ( FSHD). “There are no approved therapies to treat patients with FSHD, and losmapimod is currently […]
[…] British Columbia decided it would not provide national health insurance coverage for genetic testing of FSHD, it triggered this response from a constituent. She raises important arguments that could apply […]
[…] Palm Harbor, Florida The Mirzas I am an 86 year old white male, living with FSHD for the past 68 years. I wanted to share my life’s FSHD experiences with […]
Advocating for FSHD at the World Muscle Society Congress After wrapping up what was a busy first month of 2014, we finally have a moment to look back on 2013 […]
[…] with a disease that most people have never heard of. Called Facioscapulohumeral Muscular Dystrophy, or FSHD, the disorder is named for the body areas that are typically affected: the face […]
