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Face-to-face meetings add an extra layer of feelings and motivation by Ricardo Gerpe, FSHD Spain Alexandra Belayew and Ricardo Gerpe at FSHD Connect 2022. I had decided to go to […]
[…] a rare union of two musical icons to raise funds for FSH muscular dystrophy research. FSHD, one of the most prevalent types of muscular dystrophy, is a degenerative muscle disease […]
[…] the award-winning non-profit and global leader in the quest to cure Facioscapulohumeral Muscular Dystrophy ( FSHD), announced that an FSH Society-funded research team led by Peter Jones, PhD, at the […]
Larry Chase out with his dog. by Larry Chase Those of us who live with FSHD must “pivot” our world constantly. Pivot—the buzz word for what we all are going […]
[…] ignore what was happening to my body. But denial only works for so long with FSHD. As I lost muscle strength, what replaced it was pain – pain in the […]
