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Disclaimer: Information provided by the FSHD Society does not imply an endorsement of any of the drugs, procedures, treatments, or products discussed. Please consult your own healthcare provider about any […]
[…] for the disease. DM1 is a genetic, muscle-damaging disease that affects children and adults. Like FSHD, myotonic dystrophy weakens muscles in the face, hands, feet, and other areas of the […]
[…] a Phase 1b/2 clinical trial of its experimental therapy Resolaris in adult facioscapulohumeral muscular dystrophy ( FSHD) patients. While the number of patients in the study is small, the company stated […]
Canadian Foundation Launched! Great news for Canadians who wish to support FSHD research! Canadians can now donate funds directly towards FSHD research — and receive a tax deduction. The FSHD […]
 Did you know we have an active group of international FSHD advocacy leaders, the World FSHD Alliance? We meet every three months to discuss global strategies. The members bring […]
