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by William Saraille, Washington DC We hope we that in the not-too-distant future, treatments for FSHD will be approved by the Food and Drug Administration. But when that time comes, […]
Powered by love and resilience by Beth Johnston, FSHD Society “It’s not just about giving back—it’s about growing, having fun, and being part of something truly impactful.” – anonymous “Seeing […]
[…] feel it is a significant honor to be able to contribute to their understanding of FSHD. I have been volunteering to teach second-year neurology students about Facioscapulohumeral Muscular Dystrophy (FSHD) […]
[…] The Johns Hopkins Hospital and the Kennedy Krieger Institute are looking for first-degree relatives of FSHD patients ages 35 and older who do not currently show symptoms. Volunteers will be […]
[…] received throughout the year from fellow FSH Society members that demonstrate how they won’t let FSHD stand in their way. Your support is life-changing to those in the Society – and […]
