Browsing items tagged “early-onset - FSHD Society”

Early-Onset Parent Roundtable – VLS report

Posted on February 7th, 20242/7/24

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT This month, we’ll be sharing news from the FSHD Society’s annual Volunteer Leadership Summit in […]

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Early-Onset Parent Roundtable – Advocating for your child’s education

Posted on December 18th, 202312/18/23

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT For parents, figuring out how to advocate in schools for a child with a disability […]

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Early-Onset Parent Roundtable – Youth voices

Posted on December 6th, 202312/6/23

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT This month we will host a roundtable conversation with young adults with FSHD. They were […]

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Early-Onset Parent Roundtable with Eva Chin of Solve FSHD

Posted on November 20th, 202311/20/23

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for a conversation with Eva Chin, PhD, Executive Director of Solve FSHD, a […]

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Early-Onset Parent Roundtable – Pediatric FSHD Summit

Posted on September 27th, 20239/27/23

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT The end of September saw the first-ever workshop focused solely on pediatric FSHD. The workshop, […]

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