8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT
This month, we’ll be sharing news from the FSHD Society’s annual Volunteer Leadership Summit in Chicago. Debbie Eggleston and Kristin Zwickau attended in person while Ally Roets beamed herself in via Zoom. They will discuss the progress in pediatric FSHD awareness and programs over the past year and outline the urgent projects that need to be launched.
Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.
We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.
Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter