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Highlights include: Annual research report, with updates from FSH Society grant recipients. Groundbreaking study establishing that FSHD may be the most prevalent of muscular dystrophies. A new NIH-funded Wellstone Center […]
Three entrepreneurs who have been affected personally by FSHDÂ announced at this year’s FSHD Champions meeting that they have established a biotech dedicated to developing a treatment for FSHD. The new […]
The 2014 FSH Society FSHD International Research Consortium workshop is being held as an ancillary meeting on Friday and Saturday, October 17-18, 2014, prior to the opening of the American Society for Human […]
Many researchers have long suspected that the number of individuals with FSHD is significantly greater than has been reported. A new study from the Netherlands bears out this suspicion and […]
Living with and fighting against a deadly disease By Jessica Bartlett, Boston Business Journal Dan Perez, President and CEO of the FSH Society, has testified nearly 40 times before Congressional […]
