Carlos Romero, an FSH Society member, was featured today on Good Morning America in connection with People magazine’s annual “Half their Size” issue, which is out on news stands today. While the magazine focuses on several individuals’ remarkable success in overcoming obesity, Carlos made a point of highlighting the role his FSHD diagnosis played in his personal transformation. You… Read More »
“Muscular dystrophy is something I might have,” Levinson said. “But it doesn’t define who I am.” Ryan Levinson, of San Diego California, was diagnosed with Fascioscapulohumeral muscular dystrophy (FSHD) in 1996. Though he suffers from muscle loss typical of most people with FSHD, and can no longer hold up his arms, do a sit up,… Read More »
Support the FSH Society simply by shopping on AmazonSmile! It’s easy and doesn’t cost you a cent extra. When shopping on Amazon, simply do it through the AmazonSmile portal (smile.amazon.com). The first time you sign up at AmazonSmile, just choose the FSH Society as your charity of choice. Then start shopping!
Here are the slide decks from the 2014 FSHD Connect conference. We are still missing a few and are working to complete the collection. Alexandra Belayew: Several ways to go DUX hunting FSH Society: FSHDselfies campaign FSH Society: Fundraising workshop Jefferey Statland: Unlocking the clinical trial toolbox Kathryn Wagner: Progress towards clinical trials Louis Kunkel:… Read More »
Join with thousands of patients, family members and friends in supporting research on FSH muscular dystrophy. The FSH Society helped launch a worldwide scientific effort, and today we stand on the brink of discovering the first treatments. With big opportunities come big challenges, to raise awareness, rally patients and families to volunteer for research, and… Read More »