“For all my friends and family out there who haven’t heard, I have recently been diagnosed with FSHD which is a form of muscular dystrophy. It is a progressive disease that basically attacks my muscles, and there is nothing I can do right now to stop or slow it down.
“Last Saturday was truly a life changing experience for me. I recently joined the newly formed FSH Society chapter of Chicagolandand had an opportunity to meet with others who either have FSHD or are related to or have friends with FSHD. It was something that was necessary for my heart and gives me motivation.
FSHD is a disease that progressively weakens and causes muscles to atrophy. I was officially diagnosed in 2010.
I also want to mention that I will be sharing this a lot, so please bear with me as its extremely important to me and I will lean on friends and family for support. Also, the greatest part of all is learning that a real life therapy has the potential to get to those in need within 4-5 years. The mission of this walk to raise money where proceeds go to the cure for this disease.