Bay Area FSHD Family Day Conference Videos and Slides

We are pleased to share slides and videos from our conference held in San Francisco on July 15, 2017. Thank you to our wonderful speakers and to our sponsor Acceleron Pharma. We’re grateful to Jim Albert for editing the videos. Click on the titles to watch the videos.

• Welcome. June Kinoshita, executive director. Neil Solomon MD, and Howard Chabner JD FSH Society Board of Directors.
• FSHD 101: Genetics, Diagnosis, and Care Standards. John Day MD PhD, Director, Neuromuscular Division and Clinics, Stanford University School of Medicine. 
• Physical Therapy and Exercise for FSHD. Richard Gee PT, Stanford Hospital. Download slides.
• Respiratory care in FSHD. Lee Guion MA, RRT, FAARC. Neurorespiratory Clinical Specialist (retired), Forbes Norris Research Center. Download slides.
• Know your rights. Navigating social services, law, insurance issues. Howard Chabner JD & Neil Solomon MD.
• From bench to bedside; the road to clinical trials. John Day MD PhD, Director, Neuromuscular Division and Clinics, Stanford University School of Medicine.
• Research at UC Davis: Clinical outcomes research and Acceleron’s ACE-083 clinical trial. Lisa Williams MD, UC Davis Medical Center. Download slides.
• Emerging Treatment Strategies for FSHD. Peter Jones PhD, Mick Hitchcock Endowed Chair of Medical Biochemistry, University of Nevada Reno School of Medicine. Video with German subtitles. Download slides.
• The importance of being engaged. June Kinoshita, Executive Director, FSH Society.
• Q & A, closing remarks.