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Sharing with fellow MD patients is a chance to learn and impart what we know by Robin Stemple. Reprinted with permission from Muscular Dystrophy News Today. I’ll admit that I […]
When we invited people in the community to offer “exercise hacks,” one of those who stepped forward was Rita Lynn. Following her FSHD diagnosis, she went through a period of […]
FSHD Society co-founder knew the stakes were high to get things right by Daniel Paul Perez, co-founder FSHD Society William G. “Bill” Michael passed peacefully at the age of 82 […]
Avidity Biosciences, Inc. (Nasdaq: RNA), has announced new positive AOC 1001 data demonstrating improvement in multiple functional endpoints and favorable long-term safety and tolerability in people living with myotonic dystrophy […]
September is Fall Prevention Awareness Month and was the subject of our Wellness Hour. Falls are the second most common cause of injury leading to death. For a person with […]
