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Dan Perez’s fierce advocacy will advance knowledge and extend the lives of people with FSHD Breathing complications in FSHD can be deadly, but with the lion’s share of research focused […]
My FSHD means I can be someone who changes the course of this disease for generations to come by Colette Wheeler, Los Angeles This is an edited transcript of a […]
Emma Weatherley, executive director of Australia’s FSHD Global Research Foundation, has a refreshingly positive outlook on assistive devices. Instead of seeing the need to use a brace or wheelchair as […]
Face-to-face meetings add an extra layer of feelings and motivation by Ricardo Gerpe, FSHD Spain I had decided to go to Orlando for the FSHD Connect conference although due to […]
Losmapimod has the potential to be the first drug to treat FSHD The much-anticipated Phase 3 clinical trial of losmapimod has formally begun with the dosing of the first volunteer, […]
