Our look is new. Our purpose is the same. Learn more about our brand evolution.
The recent national election, bringing in a new Administration, raises questions and concerns about the future of laws and programs of interest to researchers, patients and caregivers dealing with FSHD. […]
Please note that our office will be closed on the following dates: Thursday, November 24, 2016 Friday, November 25, 2016 Friday, December 2, 2016 Monday, December 26, 2016 Monday, January […]
Join us on Tuesday, November 29, 2016 as we participate in the fifth annual #GivingTuesday! Entering its fifth year, #GivingTuesday is a global day of giving fueled by social media […]
Take the survey now! Click here. The FSH Society is participating in an international workshop on FSHD patient registries later this week. We would like to share the patient and family perspective on […]
Produced for the FSH Society’s 25th anniversary, our new documentary tells the story of how the Society’s work has led to the discovery of the genetic cause of facioscapulohumeral muscular dystrophy […]
