Our look is new. Our purpose is the same. Learn more about our brand evolution.
Volunteering for research, feeling the weight of responsibility By David Lukas, Village of Lakewood, Illinois I was diagnosed with FSHD in April 2015. In October 2015, I participated a clinical […]
The state of Massachusetts has a program through which operators of electronic billboards must donate some space to nonprofits. We were able to obtain space by partnering with the Massachusetts […]
This spring, we are launching our most ambitious annual campaign ever to mark this, our 25th year since Daniel Perez and Steve Jacobsen founded the FSH Society. Our goal: to […]
June 24, 2016, 6:00 PM – REGISTER NOW! Grace Cathedral, San Francisco Please join the extraordinary pianist Steven Blier and baritone Theo Hoffman for a transcendent evening in one of San […]
Ever since joining the FSH Society’s Board of Directors, Abilene-resident Wendy Shack has been hoping to gather the region’s FSHD patients and families for a meeting. Last Saturday, she saw the […]
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