Ever since joining the FSH Society’s Board of Directors, Abilene-resident Wendy Shack has been hoping to gather the region’s FSHD patients and families for a meeting. Last Saturday, she saw the fruits of her efforts with the first Dallas FSH Society member get-together, held at the aLoft Las Colinas Hotel in Irvine, Texas. Skylar Conover, an FSH Society ambassador and current Ms. Wheelchair USA, joined the meeting via Skype.
Most of those who attended said this was their first time meeting others with FSHD. It was like a family reunion of relatives who had never met but who instantly recognized one another and bonded over their shared experiences of living with FSHD. The attendees shared stories, laughs and a few tears. By the time the meeting wrapped up, a number of people had already approached Wendy about providing space and food for the next meeting!
If you would like to help organize a meeting in your community, please contact Executive Director June Kinoshita by email or call 781-301-6649.