Our look is new. Our purpose is the same. Learn more about our brand evolution.
According to a Boston Business Journal story, Cambridge, Massachusetts-based biotech Acceleron Pharma has plans to test its ACE-083 compound in facioscapulohumeral muscular dystrophy patients in a phase 2 clinical trial later […]
FSH Society Board member Amy Bekier is organizing an FSH Society booth at the 2016 Los Angeles Abilities Expo (February 5-7) on the theme of artists living with FSHD. Creative artists […]
Give the gift that gives back! Anson Calder’s super slim, elegant wallet is the perfect present to put under the tree this year. “Your search for the perfect wallet is […]
This October we had our first-ever gala in Los Angeles, an incredibly fun Halloween costume ball aptly named “A Ghostly Gala to Vanish FSHD.” There, June spoke of the importance […]
Learn, let go, and find beauty in new places By Meredith L. Huml, Raleigh, North Carolina As a muscular dystrophy sufferer—I was diagnosed with FSHD at Duke University’s Muscular Dystrophy […]
