Our look is new. Our purpose is the same. Learn more about our brand evolution.
The Spring edition of FSH Watch is here! Read on to catch up on all the happenings so far in 2018: This issue‘s highlights include: -Jim Chin elected Chair of […]
We are excited to announce the launch of our first nationally branded event, the Walk & Roll to Cure FSHD. This signature fundraising event will take place in September […]
The FSH Society is soliciting nominations for its 2018 Community Award, for an individual or group that has been an outstanding contributor to the FSHD community. Given every two years, […]
We’re very pleased to share the recording of our March 8th webinar with FSH Society President & CEO Mark Stone. In this webinar, Mark shares his experiences over the past […]
During its meeting in February, 2018, the FSH Society’s Board of Directors unanimously approved the executive committee’s recommendation for Jim Chin to be our next board chairperson. The vacancy was […]
