Our look is new. Our purpose is the same. Learn more about our brand evolution.
by June Kinoshita During the month of June of this year, the FSHD community will enjoy the thrill of having one of its own lead an eight-person team in the […]
Our eye-catching T-Shirts, totes and mugs feature the Bach 2 Bowie logo from the Ghostly Gala, our annual Los Angeles-based event to raise awareness and funds to fight FSH muscular […]
The FSH Society is seeking a committed, experienced leader to serve as Chief Executive Officer (CEO). The CEO will lead the Society in meeting its important mission: to serve as […]
Frank Kolakowski and Manuel Gomez, FSHD advocates extraordinaire, were on hand to represent FSH muscular dystrophy at this year’s National Institutes of Health Rare Disease Day event. Thank you!
The FSH Society is looking forward to seeing you! If you live in the New England area or even just happen to be visiting, we’d love to have you […]
