Our look is new. Our purpose is the same. Learn more about our brand evolution.
As we come up on the last days of 2016, we are taking one final look back on the incredible year it has been, and one last moment to recognize […]
As we continue to look back on the incredible year we have had, we want to recognize others who have shared their inspirational stories, strength and commitment to continue to […]
We are excited to announce the arrival of our newest edition of the FSH Watch. This Watch not only shares patient stories and information on coping with FSHD, but also […]
As we look back on the incredible year we have had, we want to acknowledge those who have shared their inspirational stories, strength and commitment to continue to do the […]
We are excited to share with you a survey containing questions to help researchers better understand the impact of FSHD on patients and caregivers. The survey was developed collaboratively by […]
