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International workshop in November reaches consensus on a global FSHD patient registry. If you are an individual with FSHD, or a family member, you may have been asked to join a […]
As we come up on the last days of 2016, we are taking one final look back on the incredible year it has been, and one last moment to recognize […]
As we continue to look back on the incredible year we have had, we want to recognize others who have shared their inspirational stories, strength and commitment to continue to […]
We are excited to announce the arrival of our newest edition of the FSH Watch. This Watch not only shares patient stories and information on coping with FSHD, but also […]
As we look back on the incredible year we have had, we want to acknowledge those who have shared their inspirational stories, strength and commitment to continue to do the […]
