Our look is new. Our purpose is the same. Learn more about our brand evolution.
At the end of 2015, our Board of Directors pledged gifts totaling $384,805 and challenged FSH Society members and friends to match it. We’re delighted to announce that not only […]
The FSH Society has teamed up with the Jain Foundation and 7 other patient advocacy organizations to fund scholarships to college students who teach others about hereditary muscle-weakening diseases. These […]
This October we had our first-ever gala in Los Angeles, an incredibly fun Halloween costume ball aptly named “A Ghostly Gala to Vanish FSHD.” There, June spoke of the importance […]
Thanksgiving is that time of year when we pause to appreciate the blessings in our lives. There’s a good reason Thanksgiving is everyone’s favorite holiday, and it’s not just the […]
Be first online to take advantage of this special sale from Anson Calder, a New York City-based travel accessories company. Anson Calder’s finely crafted, luxury goods were designed by and […]
