By FSH Society Ambassador Trisha Sprayberry I’m sure everyone knows about the ALS ice bucket challenge: folks dousing themselves with icy buckets of water for ALS. This campaign took off nationally with… Read More »
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FSH Society Beneficiary of Variety of Fall Fundraising Events
From PRWeb The FSH Society, the Massachusetts-based charity that has transformed the science of the little-known and incurable disease, facioscapulohumeral muscular dystrophy (FSHD), will be the beneficiary of a collection… Read More »
2015 Spring/Summer issue of FSH Watch is out!
The latest issue of our FSH Watch newsletter has just come out. You can download it here. Highlights include: The first evidence-based FSHD care guideline has been published. What is it? How… Read More »
Become involved with our FSHD Be Strong Campaign!
Want to see a shirt that will knock your socks off? In addition to style, for every shirt or sweatshirt sold, 100% of the profits goes back to the FSH… Read More »
International facioscapulohumeral muscular dystrophy research conference in Boston
The FSH Society’s 2015 Facioscapulohumeral Muscular Dystrophy (FSHD) International Research Consortium and Planning Meeting will convene in Boston this year, on October 5-6. This meeting is the largest annual forum… Read More »