Our look is new. Our purpose is the same. Learn more about our brand evolution.
We’re excited to announce the arrival of our new “About FSHD” brochure. Updated with the latest information on genetics, symptoms, diagnosis, patient care and more, this is your essential guide […]
The FSH Society is seeking qualified candidates for its Board of Directors. The Society’s mission is to deliver treatments and a cure for FSHD by connecting all the stakeholders and promoting research […]
Thursday October 1, 2015 8:00-9:00 PM EST The FSH Society is delighted to host this webinar and Q & A session with Rabi N. Tawil, MD. Dr. Tawil is Co-Director of the […]
This just in from Doug Craig’s Facebook page! We were walking down Market Street in Philly and came upon the Fox 29 station. We decided to pitch our story, and […]
By FSH Society Ambassador Trisha Sprayberry I’m sure everyone knows about the ALS ice bucket challenge: folks dousing themselves with icy buckets of water for ALS. This campaign took off nationally with […]
