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Advocacy with humor and hacks Marisa Spain has a knack for making everyday advocacy both fun and impactful. Based in southeastern Michigan, Marisa brings fresh energy to accessibility awareness with […]
Finding a way around all obstacles by June Kinoshita, FSHD Society One lesson Michelle Mellion, MD, absorbed from seeing patients at a Muscular Dystrophy Association (MDA) neuromuscular clinic is that […]
Building an early-onset community Meet Archer Sverdrup, a St. Louis native with a love for power soccer, arts and crafts, and hanging out with their loyal German Shepherd, Blue. Archer […]
by Brian Jude Loiacono I have been volunteering to teach second-year neurology students about Facioscapulohumeral Muscular Dystrophy (FSHD) at the Renaissance School of Medicine at Stony Brook University. This is […]
The Feeling Fit Zoom community hosts twice-monthly Zoom sessions about exercises tailored to the needs of individuals with FSHD. The group hosted recent discussions about the role of personal trainers […]
