by Chelsea Moeller, Development Director – FSHD Society Retiree Joanne Dalessandro has been busy – busier than she ever was during her 50-year career in sales. Between weekly medical appointments, […]
By Leah Lee Originally posted to the Muscular Dystrophy Coalition Facebook Group on July 26, 2025. Loving someone with FSHD means learning to live in constant motion. Everything is always […]
This recent FSHD University webinar titled “Breathing with FSHD” features Dr. Joshua Benditt, a pulmonary and critical care expert at the University of Washington. He provides a comprehensive overview aimed […]
By Rick Whitehead This past June, I had the opportunity to attend the inaugural FSHD Connect Europe meeting. Here are my takeaways from the conference that I would like to […]
By Angela Davis, Marquette, Michigan Do what you can, while you can. I always have had that mantra for my life. After being diagnosed with FSHD when I was 38 […]
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