Our look is new. Our purpose is the same. Learn more about our brand evolution.
We’re excited to announce the arrival of our new “About FSHD” brochure. Updated with the latest information on genetics, symptoms, diagnosis, patient care and more, this is your essential guide […]
Thursday October 1, 2015 8:00-9:00 PM EST The FSH Society is delighted to host this webinar and Q & A session with Rabi N. Tawil, MD. Dr. Tawil is Co-Director of the […]
By FSH Society Ambassador Trisha Sprayberry I’m sure everyone knows about the ALS ice bucket challenge: folks dousing themselves with icy buckets of water for ALS. This campaign took off nationally with […]
Even without treatment, a diagnosis is therapeutic By Asifa Lalji (from her article in the FSH Watch Newsletter Spring/Summer 2015) When the Canadian provincial government of British Columbia decided it […]
By Russell Caratenuto, FSH Society Ambassador As a child I never second-guessed my ability to stick out my shoulder blades and make what my friends would call “wings”. This difference […]
