by MICHELLE CHAUVIN Sterling Heights, Michigan Bike riding is something I’ve always enjoyed. After my husband and I were married, we would drag our bikes down the stairs from our third-floor apartment for a four-mile ride and run every day after work. Seven years later we had our son, and two years after that our… Read More »
Rediscovering the Freedom of Bicycling
FSHD Family Day Conference in Los Angeles
The FSH Society’s Los Angeles FSHD Family Conference will be held on October 21, 2018, at Santa Monica College’s Bundy Campus. Join patients, families, and top researchers and clinicians for an afternoon of intensive learning, socializing, and networking. Hear from expert clinicians about best practices in the care of FSH muscular dystrophy health issues, including… Read More »
Ask the Physical Therapist series
Our blog series of Q&As with physical therapist Julie Hershberg contain so many useful tips that we thought it would be helpful to index them all in one place. Bookmark this post so you’ll have it at your fingertips! Inversion tables, trigger points, and chronic pain management Car Accidents and FSHD Zero-Gravity Treadmills, Strength Training,… Read More »
Bay Area FSHD Family Day Conference Videos and Slides
We are pleased to share slides and videos from our conference held in San Francisco on July 15, 2017. Thank you to our wonderful speakers and to our sponsor Acceleron Pharma. We’re grateful to Jim Albert for editing the videos. Click on the titles to watch the videos. Welcome. June Kinoshita, executive director. Neil Solomon… Read More »
Ohio FSHD Family Day Conference
Strengthening our network in the Midwest The FSHD Family Day Conference, hosted by Nationwide Children’s Hospital and the FSH Society on June 11, 2017, drew about 70 patients, families, researchers, and clinicians to Columbus, Ohio. The half-day meeting provided an opportunity for two of the nation’s leading FSHD research centers to share expertise and research… Read More »