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[…] REYNOLDS, Kansas City, Missouri When we began planning for the inaugural Walk & Rolls to Cure FSHD, a $105,000 fundraising goal felt ambitious. Then an incredible group of volunteer leaders stepped […]
[…] Wild Wing Cafe in Franklin, Tennessee, last night. Using the occasion to generate awareness about FSHD, the Society found a donor who agreed to give $1 for every Tweet and […]
[…] after filing papers with the FDA to begin human testing of its first drug, for FSHD, according the Fulcrum’s CEO, Robert Gould. “We think that the strength of the preclinical […]
[…] of this approach in a large animal model of Duchenne. What is the significance for FSHD? It has been shown previously that the CRISPR method can fix the DMD defect […]
[…] reaches at least one person and helps him or her understand that a diagnosis of FSHD or any other neuromuscular disease can be transcended. Growing up, I knew something was […]
