selfie noun, informal – a photograph that one has taken of oneself, typically one taken with a smartphone or webcam and uploaded to a social media website – Oxford Dictionary Our national social media campaign to raise awareness about FSHD uses the popular cultural meme of the “selfie” – a photograph that one has taken of oneself,… Read More »
#FSHDselfies Shoot a Selfie, Raise Awareness
Twitter blows up for Phil’s Jam
The first annual “Phil’s Jam for FSH” drew a crowd of music lovers to the Wild Wing Cafe in Franklin, Tennessee, last night. Using the occasion to generate awareness about FSHD, the Society found a donor who agreed to give $1 for every Tweet and Facebook share about the event during a 24-hour period, up… Read More »