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Are you ready to advocate for the FSHD community? We need your voice to help influence hearts and minds! By working together, we can make sure that our elected officials, […]
[…] clip, click here. After being diagnosed at 19 years old, Brchan has battled the effects of FSHD most of her life. “It was very hopeless,” said Brchan. “They knew very little about […]
Frank Kolakowski and Manuel Gomez, FSHD advocates extraordinaire, were on hand to represent FSH muscular dystrophy at this year’s National Institutes of Health Rare Disease Day event. Thank you!
[…] agree with? The general thought in the past is that strength training was harmful for FSHD—that is not the case now. Moderate-intensity strength and aerobic exercises have been found to […]
[…] thing to consider is that, depending on the degree of weakness of a person with FSHD, some muscles may be working or exercising to their maximum just to perform everyday […]
