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[…] years, countless researchers have dedicated their time and energy striving to find a cure for FSHD. Thanks to the work of researchers like Dr. Jeffrey Statland, Dr. Rabi Tawil and […]
[…] severely ill and being bedridden for a time can result in loss of muscle. With FSHD, it is that much more difficult to recover muscle volume and strength. Respiratory illness […]
[…] through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. Throughout the hike, sponsored by Vestigo, Spencer will be carrying his sister Carden on […]
Not every person with FSHD will need a mobility device, but many will at some point. The many designs and brands on the market can be daunting.
[…] group of women who meet monthly on Zoom and share a common bond of having FSHD. “We speak openly with each other, however we maintain confidentiality of who shares what, […]
