Browsing items tagged “Patient Connect - FSHD Society”

My Boston Adventure: traveling solo with my wheelchair

Posted on May 4th, 20175/4/17

Written by Trisha Lynn Sprayberry Las Vegas, Nevada My adventure began late Wednesday night, November 9, 2016. My fiancé, Erin, had dropped me off at the airport. With my suitcase […]

Filed under: Living with FSHD

Tags: #CureFSHD, Cure FSHD Gala, IRC, Patient Connect

What Would You Like to #AskTheResearcher?

Posted on October 25th, 201610/25/16

For the past 25 years, countless researchers have dedicated their time and energy striving to find a cure for FSHD. Thanks to the work of researchers like Dr. Jeffrey Statland, […]

Filed under: FSHD Research

Tags: #AskTheResearcher, FSH muscular dystrophy, FSHD, Patient Connect, Research breakthroughs