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[…] have had with your doctor the first time you tried to tell them of your FSHD symptoms. I was 16 then, and although I had good physical awareness, I lacked […]
Great.com interviews FSHD Socıety about Curing FSHD While Empowering Affected Families Danielle Riberio from Great.com interviewed Mark Stone, CEO of FSHD Society, as part of their ‘Great.com Talks With…’ podcast. […]
[…] what’s called an “observational” or “natural history” study of people with facioscapulohumeral muscular dystrophy ( FSHD) that evaluates how symptoms and abilities change over a period of time. It is […]
[…] to share some information provided by our panel of medical advisors. For most individuals with FSHD, the risk of serious illness from COVID-19 infection is the same as the general […]
[…] A new study has revealed more players in the pathway of facioscapulohumeral muscular dystrophy, or FSHD, the most common form of muscular dystrophy. Led by Fred Hutchinson Cancer Research Center […]
