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by Erin Saxon, FSHD Society A few months ago, I began an exciting project: capturing the stories of the early members of the FSHD Society. Since then, I’ve interviewed several […]
by June Kinoshita During the month of June of this year, the FSHD community will enjoy the thrill of having one of its own lead an eight-person team in the […]
[…] have had with your doctor the first time you tried to tell them of your FSHD symptoms. I was 16 then, and although I had good physical awareness, I lacked […]
Great.com interviews FSHD Socıety about Curing FSHD While Empowering Affected Families Danielle Riberio from Great.com interviewed Mark Stone, CEO of FSHD Society, as part of their ‘Great.com Talks With…’ podcast. […]
[…] what’s called an “observational” or “natural history” study of people with facioscapulohumeral muscular dystrophy ( FSHD) that evaluates how symptoms and abilities change over a period of time. It is […]
