Great.com interviews FSHD Socıety about Curing FSHD While Empowering Affected Families
Danielle Riberio from Great.com interviewed Mark Stone, CEO of FSHD Society, as part of their ‘Great.com Talks With…’ podcast. This series is meant to serve as an antidote to the preponderance of negative news stories and aims to shed light on organizations and experts whose work is making a positive impact on the world.
The FSHD Society made a pact with patients to get effective treatments and drugs (“therapeutics”) to families affected with FSHD. In 2018, we set an extraordinary goal to do all we can to ensure the first-ever FSH muscular dystrophy therapy would be approved by the year 2025.
We want to be a source of connection, support, and empowerment to all patients. As a guest on Great.com, Mark speaks to a new audience, educating them more about what FSHD is, how it impacts families, and what we are doing to put an end to it.
Great.com is an innovative charity project working to solve the climate crisis. They believe that climate change is the most pressing issue facing mankind today and ending it will take swift action and creative problem solving. Great.com’s founder, Erik Bergman, has a background in online casino marketing and started Great.com with the goal to move money from the New Jersey online casino industry to climate research.