Challenging the narrative: new film stars actor with FSHD
Good Bad Things is unlike any film you’ve ever seen by Erin Saxon, FSHD Society Good Bad Things is almost here! Last August, we shared updates on the project, and […]
Our look is new. Our purpose is the same. Learn more about our brand evolution.
Good Bad Things is unlike any film you’ve ever seen by Erin Saxon, FSHD Society Good Bad Things is almost here! Last August, we shared updates on the project, and […]
[…] the Event can be viewed & purchased here:   www.donijones.com  (Go to clients > access code = FSHD, password = 2016) The Ruekert Family Doni & Marble Jones donated their time & […]
Our FSHD University webinar on January 27, 2022, was a revelation! We learned that the muscle weakness that causes scapular winging can lead to maladaptive, compensatory movements which themselves can result […]
[…] being able to travel again. But traveling with a disability imposes challenges too. On the FSHD Society Wellness Hour of April 12, 2021, guest speakers Ray Jordan and Carden Wyckoff […]
This May 5, the FSHD Society is participating in #GivingTuesdayNow. This is a global day of giving and unity that arose as an emergency response to the unprecedented need caused […]