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[…] Dr. Amini Chermahini and his colleagues were awarded the Best Poster Prize at this year’s FSHD International Research Congress. Here he explains the significance of this work. The FSHD field […]
[…] a leading authority on respiratory issues that can arise in individuals with neuromuscular conditions, including FSHD. In the webinar, Bach recommended that every FSHD patient have respiratory function tested regularly, […]
[…] a gene involved in a most common form of muscular dystrophy. Facioscapulohumeral muscular dystrophy ( FSHD) is among the most common muscle-wasting diseases, affecting more than 500,000 people around the […]
by June Kinoshita Dr. Jeffrey Statland The FSHD Clinical Trial Research Network (CTRN), which was launched last year with a $121,000 grant from the FSH Society, has received a UO1 […]
[…] Beth Johnston, Development Officer at the FSH Society When my husband, Jeff, was diagnosed with FSHD in 2001 (after years of wondering what was going on with his body), we […]
