Our look is new. Our purpose is the same. Learn more about our brand evolution.
Join us for the annual World FSHD Day to raise awareness of FSHD globally over social media on June 20th! Learn about the orange slice selfie campaign and download our […]
Join us on Tuesday, November 28th, 2017 as we participate in the 6th annual #GivingTuesday! #GivingTuesday is a global day of giving fueled by social media and collaboration following the widely […]
Written by Trisha Lynn Sprayberry Las Vegas, Nevada My adventure began late Wednesday night, November 9, 2016. My fiancé, Erin, had dropped me off at the airport. With my suitcase […]
On Sunday, October 30th, Griff Entertainment will provide the first-ever livestream for the FSH Society’s second annual Ghostly Gala to Vanish FSHD. The gala will be held at the Cicada […]
