Our look is new. Our purpose is the same. Learn more about our brand evolution.
FSH Society Ambassador Ryan Levinson just transmitted this video from his berth in Fakarava, a tiny atoll in the Tuamotu chain of French Polynesia! He shares how he has adapted his movements to […]
Here are selected questions from an FSH Society webinar held on October 1, 2015, with Rabi Tawil, MD, co-director of the MDA Neuromuscular Disease Clinic at the University of Rochester, […]
By Amy Bekier, San Diego, California On July 30, 2016, twenty-five FSHD patients, family and scientists assembled at Genea Biocells in La Jolla, California, to hear presentations by senior scientists […]
Grants approved from February 2016 cycle set new record. The FSH Society has committed $648,774 in funding to five research projects that aim to break new ground in the search […]
Register at the following links: Research Connect Patient Connect CureFSHD Gala This year, for the first time, we have combined our two signature meetings into FSHD Connect, a single, three-day […]
