This year, for the first time, we have combined our two signature meetings into FSHD Connect, a single, three-day super-conference. Our events begin on November 10-11 with Research Connect (formerly the International Research Consortium Workshop). Open to active research professionals from around the world, the workshop is the premiere annual platform for clinicians, medical researchers and basic scientists to present and discuss new developments in FSH muscular dystrophy research.
In the afternoon of November 11, we segue to the Patient Connect conference, which brings together hundreds of patients and family members with top researchers, doctors, and health experts. Continuing through November 12, this gathering provides a day and a half of immersive learning and community-building. This year’s meeting will feature talks by leaders in the field of FSHD, including reports from major clinical and research centers, question-and-answer panel sessions, and educational workshops.
Organized to mark the FSH Society’s 25th Anniversary, FSHD Connect is the first time so many researchers, clinical experts, patients, family members, caregivers, and advocacy groups will convene in once place. To celebrate this milestone the FSH Society will host its inaugural CureFSHD National Gala on the evening of Friday, November 11. You won’t want to miss this imaginative tribute to 25 years of breakthrough research, capped by an inspiring performance by world-renowned pianist Steven Blier.
Overnight accommodations are available at Westin Copley Place. The FSH Society has a special conference rate of $309 per night (single or double occupancy), plus taxes. As of this time, the hotel guarantees 22 accessible rooms, 7 with roll-in showers. For the best selection of accessible rooms and showers, please make your reservations early. The closing date for the Society’s block of rooms is October 17. Please indicate your Group Affiliation under “FSH Annual Meeting 2016” when reserving. For reservations, call 1-800-937-8461 or reserve on-line at: