Our look is new. Our purpose is the same. Learn more about our brand evolution.
We are busy preparing for World FSHD Day this June 20. World FSHD Day is a global movement to raise awareness of FSHD. From orange slice selfies and proclamations to […]
by Erin Saxon, FSHD Society A few months ago, I began an exciting project: capturing the stories of the early members of the FSHD Society. Since then, I’ve interviewed several […]
Every move we make drives us toward our goal By June Kinoshita, FSHD Society There is so much going on at the FSHD Society that for someone observing from the […]
By Amy Bekier, San Diego, California Traveling is supposed to be magical. Think sunsets in Santorini, surprise upgrades, and tiny shampoos you definitely don’t need but absolutely take. But if […]
A New Look. A Stronger Voice. The Same Mission. We’ve refreshed our brand to better reflect who we are, the impact we make together, and the future we’re building with […]
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