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by Haviva Ner-David, Kibbutz Hannaton, Israel WHEN I WAS diagnosed, aside from recommending swimming, the doctor told me and my mother there was an organization I could join called the… Read More »
Overcoming separateness
Fulcrum’s Phase 3 trial news – what does it mean for patients?
by June Kinoshita, Director of Research and Patient Engagement Fulcrum’s announcement that it will proceed with a Phase 3 clinical trial of losmapimod is big news for the FSHD community…. Read More »
Fulcrum announces Phase 3 trial of losmapimod
From Fulcrum Therapeutics’ press release Reachable Workspace (RWS) primary endpoint based on discussions with FDA and EU regulatory agencies Trial expected to begin in 2Q 2022 Potential first-to-market therapy for… Read More »
Let’s start a movement!
How I got my local hospital to make accommodations for me by Diane Pappas, Gloucester, Massachusetts You don’t realize there is a problem with something until you experience it yourself. … Read More »
Women on Wellness – Activities of daily living
by Ranae Beeker, RN The Women on Wellness (WOW) group, a group of women who personally share the challenges of FSHD meets on the first Wednesday of the month (2P… Read More »