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Our newest issue of the FSH newsletter is here! We’re so excited to share new scientific updates, patient stories, and the latest FSH Society initiatives. Highlights include: The creation of […]
The FSH Society Board welcomes two new members, who were elected at the May 2016 Board meeting. They bring considerable business, financial, governance, and marketing knowledge with them, along with […]
Grants approved from February 2016 cycle set new record. The FSH Society has committed $648,774 in funding to five research projects that aim to break new ground in the search […]
Register at the following links: Research Connect Patient Connect CureFSHD Gala This year, for the first time, we have combined our two signature meetings into FSHD Connect, a single, three-day […]
Beth Johnston has joined the FSH Society in August of 2016 as Development Officer. She will work with the Executive Director and the leadership team to create, execute and grow the […]
