The 2020 FSHD Connect. hosted by the FSHD Society, is the largest biennial educational and networking gathering of FSHD patients and families, researchers, and clinicians.
Join radio host Tim Hollenback via Facebook Live on Wednesday, January 8, at 9:00 PM ET | 8:00 PM Central. His guest this month is FSHD research rock star Scott Harper, PhD, a leader in the effort to develop gene therapy. Harper is principal investigator at the Center for Gene Therapy at the Research Institute at… Read More »
#GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. We are marking the day by holding our first GivingTuesday Telethon. Streamed over Facebook Live, our Telethon host will interview leaders in our community—activists, celebrities, scientists, doctors, people doing awesome things—to raise worldwide awareness of… Read More »
Our newest issue of the FSH newsletter is here! We’re so excited to share new scientific updates, patient stories, and the latest FSH Society initiatives. Highlights include: The creation of a Clinical Trial Research Network of universities, designed to speed the search for treatments for FSH (cover story); Patient’s brother competes in American Ninja Warrior… Read More »