The 2020 FSHD Connect. hosted by the FSHD Society, is the largest biennial educational and networking gathering of FSHD patients and families, researchers, and clinicians.
Join radio host Tim Hollenback via Facebook Live on Wednesday, January 8, at 9:00 PM ET | 8:00 PM Central. His guest this month is FSHD research rock star Scott… Read More »
#GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. We are marking the day by holding our first GivingTuesday… Read More »
Our newest issue of the FSH newsletter is here! We’re so excited to share new scientific updates, patient stories, and the latest FSH Society initiatives. Highlights include: The creation of… Read More »