Our look is new. Our purpose is the same. Learn more about our brand evolution.
A few years ago, James Partridge, a long-time FSHD Society member, decided to re-boot his career and pursue his passion for the blues. His home city of Ann Arbor, Michigan, […]
TikTok, the video-sharing app formerly known as musical.ly, is the world’s fastest growing social networking platform. This year, TikTok is participating in World FSHD Day on June 20th. The relationship […]
Have you thought about what you can do in your own backyard to serve FSHD patients and families in your community and advocate for greater awareness and resources to develop […]
From a simple act of kindness When Jim Chin, chair of the FSH Society board of directors, donated funds for travel scholarships so that 20 patients could attend our 2018 […]
The time to act is now If we deliver on our promise to have therapies to our families by 2025, it will be because of your donation today. With your […]
