Join us for the first-ever FSHD Family Day Conference to grace the shores of Lake Michigan. Join family, friends, and fellow travelers living with FSH muscular dystrophy for a wonderful… Read More »
Chicagoland FSHD Family Day on October 20
Webinar: CRISPR strategy to treat FSHD
For our next webinar on August 10, at 2 p.m. EST, Charis Himeda, PhD, of the University of Nevada Reno will discuss her pioneering work to show how CRISPR gene-editing… Read More »
Our chapter program is booming!
Since its launch last year, our national chapter program has grown by leaps and bounds. We now have 25 chapters in 18 states! Check out the map above and visit… Read More »
Legendary festival to support FSHD Society
A few years ago, James Partridge, a long-time FSHD Society member, decided to re-boot his career and pursue his passion for the blues. His home city of Ann Arbor, Michigan,… Read More »
TikTok to participate in World FSHD Day
TikTok, the video-sharing app formerly known as musical.ly, is the world’s fastest growing social networking platform. This year, TikTok is participating in World FSHD Day on June 20th. The relationship… Read More »